Investigating the Resilience Levels of Parents with Children with Multiple Disabilities Based on Different Variables

Sinem Kadi, Muzeyyen Eldeniz Cetin


APA 6th edition
Kadi, S., & Cetin, M.E. (2018). Investigating the Resilience Levels of Parents with Children with Multiple Disabilities Based on Different Variables. European Journal of Educational Research, 7(2), 211-223. doi:10.12973/eu-jer.7.2.211

Harvard
Kadi S., and Cetin M.E. 2018 'Investigating the Resilience Levels of Parents with Children with Multiple Disabilities Based on Different Variables', European Journal of Educational Research , vol. 7, no. 2, pp. 211-223. Available from: http://dx.doi.org/10.12973/eu-jer.7.2.211

Chicago 16th edition
Kadi, Sinem and Cetin, Muzeyyen Eldeniz . "Investigating the Resilience Levels of Parents with Children with Multiple Disabilities Based on Different Variables". (2018)European Journal of Educational Research 7, no. 2(2018): 211-223. doi:10.12973/eu-jer.7.2.211

Abstract

This study investigated the resilience levels of parents with children with multiple disabilities by utilizing different variables. The study, conducted with survey model –a qualitative method- included a sample composed of a total of 222 voluntary parents (183 females, 39 males) residing in Bolu, Duzce and Zonguldak in Turkey. Parental Information Form and Family Resilience Scale, consisting of 4 sub dimensions (Challenge, Self Efficacy, Commitment to Life and Control) and a total of 37 items, were used in the framework of the study which included reliability and validity studies of the scale as well. Differences between sub groups were not statistically significant for the following variables:  gender of children with multiple disabilities; age of children with multiple disabilities; support received for child care by parents of children with multiple disabilities; health problems of parents of children with multiple disabilities; psychological support received by parents of children with multiple disabilities; age of parents of children with multiple disabilities; income levels and education of parents of children with multiple disabilities (p>0.05). However, significant differences were observed in Challenge dimension in terms of gender of the parents and the type of disability.

Keywords: Resilience, family resilience, multiple disability, parents, resilience level.


References

Ahlert, I. A., & Greeff, A. P. (2012). Resilience factors associated with adaptation in families with deaf and hard of hearing children. American Annals of The Deaf, 157(4), 391–404.

Akinci, A., & Darica, N. (2000). Ozurlu cocuga sahip anne-babalarin umutsuzluk duzeylerinin incelenmesi [Examination of the hopelessness levels of parents with handicapped children]. Cocuk Forumu Dergisi, 3(2), 25-31.

Aydin, A., Yilmaz, K., & Altinkurt, Y. (2013). Egitim yonetiminde pozitif psikoloji [Positive psychology in educational administration]. International Journal of Human Sciences, 10(1), 1470-1490.

Bayat, M. (2007). Evidence of resilience in families of children with autism. Journal of Intellectual Disability Research, 51 (9), 702-714.

Bayrakli, H. (2010). Zihinsel Engelli ve Engelli Olmayan Cocuga Sahip Annelerde Yilmazliga Etki Eden Degiskenlerin Incelenmesi [Investigating the factors affecting resiliency in mothers of mentally retarded and nondisabled children] (Master’s Thesis). Retrived from https://tez.yok.gov.tr/UlusalTezMerkezi

Bekhet, A., Johnson, N. L., & Zauszniewski, J. A. (2012). Resilience in family members of persons with autism spectrum disability: a review of the literature. Issues in Mental Health Nursing, 33, 650–656.

Boyraz, G., & Sayger, T. V. (2011). Psychological well-being among fathers of children with and without disabilities: the role of family cohesion, adaptability and paternal self-efficacy. American Journal of Men's Health, 5(4), 286–296.

Cavkaytar, A., & Diken, I., H. (2005). Ozel Egitime Giriş. [Introduction of special education]. Ankara: Kok Yayincilik.

Cripe, C. T. (2013). Family resilience, parental resilience and stress mediation families with autistic children (Doctoral Dissertation). https://pqdtopen.proquest.com/doc/1462534031.html?FMT=AI.

Caglar, D. (1979). Gerizekali Cocuklar ve Egitimi [Mentally retarded children and education]. Ankara: Ankara Universitesi Egitim Fakultesi Yayinlari.

Duckworth, A. L., Steen, T.A. & Seligman, M.E.P. (2005). Positive psychology in clinical practice. Annual Review of Clinical Psychology, 1, 629-651.

Earvolino-Ramirez, M. (2007). Resilience: a concept analysis. Nursing Forum, 42, 73−82.

Eldeniz Cetin, M. (2013). Agir ve coklu yetersizligi olan bireylerin tercihlerinin degerlendirilmesi ve secim yapma becerisinin ogretimi [Preference assessment in individuals with profound and multiple disabilities (pmd) and teaching choice-making] (Doctoral Dissertation). Retrived from https://tez.yok.gov.tr/UlusalTezMerkezi

Gerstein, E. D. , Crnic, K. A. , Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53(12), 981–997.

Greeff, A. P., & Nolting, C. (2013). Resilience in families of children with developmental disabilities, Families, Systems & Health, 31(4), 396–405.

Greeff, A. P., & Walt, K. J. (2010). Resilience in families with an autistic child. Education And Training In Autism and Developmental Disabilities, 45(3), 347–35.

Gundogdu, F. B. (1995). Otistik ve normal cocugu olan anne-babalarin evlilik uyumlarini algilamalari ve bazi degiskenler bakimindan karsilastirilmasi [The Comparison of parents of autistic and normal children regarding perception of marital adjustment and other variables] (Master’s Thesis). Retrived from https://tez.yok.gov.tr/UlusalTezMerkezi

Jonker, L. & Greeff, A. P. (2009). Resilience factors in families living with people with mental ilnesses. Journal of Community Psychology, 37(7), 859–873.

Kaner, S. & Bayrakli, H. (2010). Anne Yilmazlik Olcenin psikometrik ozellikleri [Psychometric properties of the mother  resilience scale]. Egitim Bilimleri ve Uygulama Dergisi, 9(17), 77-94.

Kaner, S. & Bayrakli, H. (2010). Aile Yilmazlik Olcegi: gelistirilmesi, gecerligi ve guvenirligi. [Family resilience scale: development, reliability and validity]. Ankara Universitesi Egitim Bilimleri Fakultesi Ozel Egitim Dergisi, 11(2) 47-62.

Kaner, S., Bayrakli, H. & Guzeller, C. O. (2011). Anne-babalarin Yilmazlik algilarinin bazi degiskenler acisindan incelenmesi [Investigating perception of parental resilience in terms of some variables]. Ankara Universitesi Egitim Bilimleri Fakultesi Ozel Egitim Dergisi, 12(2) 63-78.

Kapp, L. & Brown, O. (2011). Resilience in families adapting to autism spectrum disability. Journal of Psychology In Africa, 21(3), 459-46.

Karairmak, O. & Sivis, R. (2008). Modernizmden postmodernizme gecis ve pozitif psikoloji [From modernism to postmodernism: positive psychology]. Turk Psychological  Danisma ve Rehberlik Dergisi. 3(30).

Karasar, N. (2005). Bilimsel Arastirma Yontemi [Scientific Research Methodology]. Ankara: Nobel Yayincilik.

Koknel, O. (1970). Turk Toplumunda Bugunun Gencligi [Youth of Today in Turkish Society]. Istanbul: Bozok Matbaasi.

Lee, E. O., Chen, C., & Tran, T. V. (2008). Coping with hurricane Katrina: Pysychological distress and resilience among African American evacuees. Journal of Black Psychology, 20(5), 1-19.

Lee, I., Lee, E.O., Kim, H.S., Park, Y.S, Song, M. & Park, Y. H. (2004). Concept development of family resilience: a study of Korean families with a chronically ill child. Journal of Clinical Nursing, 13, 636–645.

McConnell, D., Savage, A. & Breitkreuz, R. (2014). Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities, 35(4), 833–848.

Meral, B. F. (2006). Babalarin zihin engelli cocuklarinin yetistirilmesine yonelik katilim durumlarinin belirlenmesi. [Determining father involvement in childrearing practices regarding children with mental retardation] (Master Dissertation). Retrieved from http://libra.anadolu.edu.tr/tezler/2006/345436.pdf

Mullins, J. B. (1987). Authentic voices from parents of exceptional children. Family Relations, 36, 30-33.

Patterson, J. M. (2002).  Understanding family resilience. Journal of Clinical Psychology, 58(3), 233-246.

Patterson, J. M. (2002). Integrating family resilience and family stress theory. Journal of Marriage and Family, 64, 349-360.

Plumb, J. C. (2011). The impact of social support and family resilience on parental stress in families with a child diagnosed with an autism spectrum disability (Doctoral dissertation). Retrived from https://repository.upenn.edu/cgi/viewcontent.cgi?article=1015&context=edissertations_sp2. 

Retzlaff, R. (2007). Families of children with Rett Syndrome: stories of coherence and resilience. Families, Systems, & Health, 25(3), 246–26.

Sardohan Yildirim, A. E. & Akcamete, G. (2014). Coklu yetersizligi olan cocuga sahip annelerin erken cocukluk ozel egitimi hizmetleri surecinde karsilastiklari gucluklerin belirlenmesi [Determination of difficulties encountered by mothers having children with multiple disabilities during early childhood special education services process]. Cumhuriyet International Journal of Education, 3(1), 74-89.

Sheldon, K. & King, L. (2001). Why positive psychology is necessary. American Psychologist, 6, 216-217.

Singh, N. N., Lancioni, G. E., O’Reilly, M. F., Molina, E. J., Adkins, A. D. & Oliva, D. (2003). Self-determination during mealtimes through microswitch choicemaking by an individual with complex multiple disabilities and profound mental retardation. Journal of Positive Behavior Interventions, 4, 209–215.

Sojo, V. & Guarino, L. (2011). Mediated moderation or moderated mediation: relationship between length of unemployment, resilience, coping and health. The Spanish Journal of Psychology, 14(1), 272-281.

Spevack, S. M. (2006). Assessing stimulus preferences and testing stimuli as reinforcers for children and adults with profound mental retardation and multiple disabilities (Doctoral dissertation, Manitoba University). Retrieved from http://mspace.lib.umanitoba.ca/bitstream/handle/1993/20416/

Safak, P, Eldeniz-Cetin, M. & Kot, M. (2015). Siblings Attitudes Towards Persons with Severe/Profound and Multiple Disabilities in Turkey. Procedia - Social and Behavioral Sciences. 191, 2083–2088.

Safak, P. (2009). Gorme yetersizligi olan cocuklarin egitimi [Education of children with visually impaired children]. G. Akcamete (Ed.) Genel Egitim Okullarinda Ozel Gereksinimi Olan Ogrenciler [Students with special needs in general education schools] icinde Ankara: Kok Yayincilik.

Safak, P. (2010). Coklu Yetersiziligi Olan ve Agir Derecede Yetersizlikten Etkilenmis Ogrencilerin Egitim Duzenleme Oneriler [Suggestions for training for students with multiple disabilities and severe disabilities]. 20. Ulusal Ozel Egitim Kongresi Bildirileri. Gaziantep, Turkey.

Safak, P. (2012). Agir ve Coklu Yetersizligi Olan Cocuklarin Egitimi [The education of children with severe and multiple disabilities]. Ankara: Vize yayincilik.

Tam, G. M., Phillips, K. J. & Mudford, O. C. (2011). Teaching individuals with profound multiple disabilities to access preferred stimuli with multiple microswitches. Research in Developmental Disabilities, 32, 2352-2361.

Tasdemir, F. (2013). Gorme Engelli Ogrenci Annelerinin Yilmazlik Ozelliklerinin Incelenmesi: Istanbul Ili Ornegi [The examination of the indomitableness characteristics of the sight disabled students mothers] (Unpublished Master Dissertation). Retrived from https://tez.yok.gov.tr/UlusalTezMerkezi