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Christiaan Huygensstraat 44, Zipcode:7533XB, Enschede, THE NETHERLANDS
Research Article

Online Social Support and Psychological Well-Being of Caregivers of Children with Autism Spectrum Disorder

Lisfarika Napitupulu , Yohan Kurniawan

This study aimed to evaluate the effect of online social support (OSS) on the psychological well-being (PWB) of caregivers of children with autism spe.

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This study aimed to evaluate the effect of online social support (OSS) on the psychological well-being (PWB) of caregivers of children with autism spectrum disorder (ASD). The role of gender as a moderator variable in the relationship between online social support and psychological well-being was also investigated. A quantitative research design was used to collect data from 154 caregivers of children with ASD in Indonesia using PWB and OSS questionnaires adapted into Bahasa Indonesia. Data were analyzed using SMART PLS 3.0. Online social support influences the psychological well-being of caregivers of children with ASD. At the dimension level, several OSS dimensions also affect PWB. The effect of online social support on psychological well-being is the same in both the male and female groups. This means that male and female groups benefit equally from online social support. Future research should combine the study with a qualitative method to gather data from caregivers on how OSS affects their PWB in order to gain a holistic perspective. It could be a suggestion to policymakers to provide beneficial online social media for caregivers of children with ASD.

Keywords: Caregiver, neurodevelopmental disorder, online network.

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References

Aboo Bakar, R., & Aboo Bakar, J. (2019). WhatsApp as a source of support for parents of autistic children. International Journal of Recent Technology and Engineering, 8(2S9), 202-206. https://doi.org/10.35940/ijrte.B1046.0982S919

Agnew, C. R., & South, S. C. (Eds.). (2014). Interpersonal relationships and health: Socialand clinical psychological mechanisms. Oxford University Press. https://doi.org/j2n4

AlAmmary, J. (2022). The impact of social media on women’s empowerment in the Kingdom of Bahrain. Gender, Technology and Development, 26(2), 238-262. https://doi.org/10.1080/09718524.2022.2040217

Alsa, A., Sovitriana, R., Ekasari, A., & Endri, E. (2021). Psychological Well-being of Mothers with Autistic Children. Journal of Educational and Social Research, 11(6), 247-254. https://doi.org/10.36941/jesr-2021-0144

Azer, S. A., Bokhari, R. A., AlSaleh, G. S., Alabdulaaly, M. M., Ateeq, K. I., Guerrero, A. P. S., & Azer, S. (2018). Experience of parents of children with autism on YouTube: Are there educationally useful videos? Informatics for Health & Social Care, 43(3), 219-233. https://doi.org/10.1080/17538157.2018.1431238

Bones, S., Norris, K., & Quinn, M. (2019). Empirical validation of a model predicting depression, anxiety, and stress in parents of children with autism. Clinical Psychologist, 23(3), 249-260. https://doi.org/10.1111/cp.12190

Cai, R. Y., Uljarević, M., & Leekam, S. R. (2020). Predicting Mental Health and Psychological Wellbeing in Mothers of Children with Autism Spectrum Disorder: Roles of Intolerance of Uncertainty and Coping. Autism Research: Official Journal of the International Society for Autism Research13(10), 1797-1801. https://doi.org/10.1002/aur.2341

Choi, D.-H., & Noh, G.-Y. (2020). The influence of social media use on attitude toward suicide through psychological well-being, social isolation, and social support. Information, Communication & Society, 23(10), 1427-1443. https://doi.org/10.1080/1369118X.2019.1574860

Cohen, S., Underwood, L. G., & Gottlieb, B. H. (Eds.). (2000). Social support measurement and intervention: A guide for health and social scientists. Oxford University Press. https://doi.org/gq8nhh

Cohrs, A. C., & Leslie, D. L. (2017). Depression in Parents of Children Diagnosed with Autism Spectrum Disorder: A Claims-Based Analysis. Journal of autism and developmental disorders47, 1416–1422. https://doi.org/10.1007/s10803-017-3063-y

Dada, O. I. (2019). Online social support for parents of children with autism: A Case study of an Instagram account page (Publication No. 13813506) [Doctoral dissertation, Arkansas State University]. ProQuest Dissertations and Theses Global database.

Dahiya, A. V., Ruble, L., Kuravackel, G., & Scarpa, A. (2022). Efficacy of a telehealth parent training intervention for children with autism spectrum disorder: Rural versus urban Areas. Evidence-Based Practice in Child and Adolescent Mental Health, 7(1), 41-55. https://doi.org/10.1080/23794925.2021.1941431

Demšar, A., & Bakracevic, K. (2021). Depression, anxiety, stress, and coping mechanisms among parents of children with autism spectrum disorder. International Journal of Disability, Development and Education. Advance online publication. https://doi.org/10.1080/1034912X.2021.1947474

Doty, J. L., & Dworkin, J. (2014). Online social support for parents: A Critical review. Marriage & Family Review, 50(2), 174-198. https://doi.org/10.1080/01494929.2013.834027

Esentürk, O. K., & Yarımkaya, E. (2021). WhatsApp-based physical activity intervention for children with autism spectrum disorder during the novel Coronavirus (COVID-19) pandemic: A feasibility trial. Adapted Physical Activity Quarterly38(4), 569–584.

Ferraz, D., Rabel, E. J., Franzoni, A., & Del Rio Carral, M. (2022). Young women’s experiences of health and well-being in a postfeminist social media Culture: The MeStories study protocol. International Journal of Qualitative Methods, 21. https://doi.org/10.1177/16094069221114489

Gouin, J.-P., da Estrela, C., Desmarais, K., & Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving Stress. Family Relations, 65(1), 191-206.https://doi.org/10.1111/fare.12183

Hair, J., Hult, G. T. M., Ringle, C., & Sarstedt, M. (2017). A Primer on partial least squares structural equation modeling (PLS-SEM) (2nd ed ). SAGE Publications, Inc.

Halstead, E. J., Griffith, G. M., & Hastings, R. P. (2018). Social support, coping, and positive perceptions as potential protective factors for the well-being of mothers of children with intellectual and developmental disabilities. International Journal of Developmental Disabilities, 64(4-5), 288-296. https://doi.org/10.1080/20473869.2017.1329192

Hardin, E. E., Weigold, I. K., Robitschek, C., & Nixon, A. E. (2007). Self-discrepancy and distress: The role of personal growth initiative. Journal of Counseling Psychology, 54(1), 86-92. https://doi.org/10.1037/0022-0167.54.1.86

Henseler, J., & Fassott, G. (2010). Testing moderating effects in PLS path models: An illustration of available procedures. In V. Esposito Vinzi, W. W. Chin, J. Henseler, & H. Wang (Eds.), Handbook of partial least squares: Concepts, methods and applications, 713-735. Springer. https://doi.org/10.1007/978-3-540-32827-8_31

Hickey, E. J., Hartley, S. L., & Papp, L. (2020). Psychological well-being and parent-child relationship quality in relation to child autism: An actor-partner modeling approach. Family Process, 59(2), 636-650. https://doi.org/10.1111/famp.12432

Hsu, M.-H., Chang, C.-M., & Wu, S.-L. (2020). Re-examining the effect of online social support on subjective well-being: The moderating role of Experience. Future Internet, 12(5), Article 88. https://doi.org/10.3390/fi12050088

Hussein, A. N., & Mohammed, Q. Q. (2021). Perceived social support and psychological well-being among mothers of children with autism spectrum disorder in Al-Nasiriyah city. Annals of the Romanian Society for Cell Biology, 25(4), 10117-10126. https://tinyurl.com/2s3pjurk

Iwilade, A. (2015). New spaces, new interactions? Young people’s online social networks and gender relations in Africa. Gender, Technology and Development, 19(1), 70-90. https://doi.org/10.1177/0971852414561613

Khemakhem, K., Leila, C., Kammoun, W., Ziraoui, M., Baccouhe, K., Zouri, L., Ayadi, H., Hadjkacem, I., & Moalla, Y. (2020). Depression, anxiety and related factors in Tunisian caregivers of children with autism spectrum disorders: A cross sectional survey. Acta Scientific Paediatrics, 3(10), 51-57. https://bit.ly/3l8DBEa

Legault, L. (2017). Self-determination theory. In V. Zeigler-Hill & T. Shackelford (Eds.), Encyclopedia of personality and individual differences, 1-9. Springer. https://doi.org/10.1007/978-3-319-28099-8_1162-1

Lei, X., & Kantor, J. (2021). Correlates of social support and family quality of life in Chinese caregivers of children with autism spectrum disorder. International Journal of Disability, Development and Education. Advance online publication. https://doi.org/10.1080/1034912X.2021.1940881

Likhitweerawong, N., Boonchooduang, N., & Louthrenoo, O. (2022). Parenting styles, parental stress, and quality of life among caregivers of Thai children with autism. International Journal of Disability, Development and Education, 69(6), 2094-2107. https://doi.org/10.1080/1034912X.2020.1837354

Liu, Q., Shono, M., & Kitamura, T. (2009). Psychological well-being, depression, and anxiety in Japanese university students. Depression and Anxiety, 26(8), E99-E105. https://doi.org/10.1002/da.20455

 Lowry, P. B., & Gaskin, J. (2014). Partial Least Squares (PLS) Structural equation modeling (SEM) for building and testing behavioral causal theory: When to choose it and how to use it. IEEE Transactions on Professional Communication, 57(2), 123-146. https://doi.org/10.1109/TPC.2014.2312452

Machado, S. B., Jr., Celestino, M. I. O., Serra, J. P. C., Caron, J., & Pondé, M. P. (2016). Risk and protective factors for symptoms of anxiety and depression in parents of children with autism spectrum disorder. Developmental neurorehabilitation 19(3), 146-153. https://doi.org/10.3109/17518423.2014.925519

Mihara, K., Okamura, H., Shoji, Y., Tashiro, K., Kinoshita, Y., & Tsuda, A. (2020). Personal growth and psychobiological stress responsiveness to the trier social stress test in students. Sustainability, 12(11), Article 4497. https://doi.org/10.3390/su12114497

Mohd Roffeei, S. H., Abdullah, N., & Basar, S. K. R. (2015). Seeking social support on Facebook for children with Autism Spectrum Disorders (ASDs). International Journal of Medical Informatics, 84(5), 375-385. https://doi.org/10.1016/j.ijmedinf.2015.01.015

Morelli, S. A., Lee, I. A., Arnn, M. E., & Zaki, J. (2015). Emotional and instrumental support provision interact to predict well-being. Emotion, 15(4), 484-493. https://doi.org/10.1037/emo0000084

Nick, E. A., Cole, D. A., Cho, S.-J., Smith, D. K., Carter, T. G., & Zelkowitz, R. L. (2018). The Online Social Support Scale: Measure development and validation. Psychological Assessment, 30(9), 1127-1143. https://doi.org/10.1037/pas0000558

Nikmat, A. W., Ahmad, M., Oon, N. L., & Razalii, S. (2008). Stress and psychological well-being among parents of children with autism spectrum disorder. Asean Journal of Psychiatry, 9(2), 64-72.

Porter, N., & Loveland, K. A. (2019). An integrative review of parenting stress in mothers of children with autism in Japan. International Journal of Disability, Development and Education, 66(3), 249-272. https://doi.org/10.1080/1034912X.2018.1439159

Recksiedler, C., Loter, K., Klaas, H. S., Hollstein, B., & Perrig-Chiello, P. (2018). Social dimensions of personal growth following widowhood: A three-wave study. Gerontology, 64(4), 344-360. https://doi.org/10.1159/000485916

Reinke, J. S., & Solheim, C. A. (2015). Online social support experiences of mothers of children with autism spectrum disorder. Journal of Child and Family Studies, 24, 2364–2373. https://doi.org/10.1007/s10826-014-0039-9

Ringle, C. M., Wende, S., & Will, A. (2005). Smart PLS 2.0 M3. University of Hamburg.

Ryff, C. D. (2014). Psychological well-being revisited: Advances in the science and practice of eudaimonia. Psychotherapy and Psychosomatics, 83(1), 10-28. https://doi.org/10.1159/000353263

Ryff, C. D., & Singer, B. (1996). Psychological well-being: Meaning, measurement, and implications for psychotherapy research. Psychotherapy and Psychosomatics, 65(1), 14–23. https://doi.org/10.1159/000289026

Sarason, I. G., & Sarason, B. R. (1985). Social support: Theory, research and applications. Springer. https://doi.org/10.1007/978-94-009-5115-0

Strizhitskaya, O., Petrash, M., Savenysheva, S., Murtazina, I., & Golovey, L. (2019). Perceived stress and psychological well-being: The role of the emotional stability. In S. Ivanova & I. Elkina (Eds.), Proceedings of the 7th Annual International Conference on Cognitive - Social, and Behavioural Sciences (pp. 155-162). Future Academy. https://doi.org/10.15405/epsbs.2019.02.02.18

Sun, B., Mao, H., & Yin, C. (2020). Male and female users’ differences in online technology community based on text mining. Frontiers in Psychology, 11, Article 806. https://doi.org/10.3389/fpsyg.2020.00806

Tadayon Nabavi, R. (2012). Bandura's social learning theory & social cognitive learning theory. David Amerland. https://bit.ly/41YiFQS

Temiz, G. (2020). The relationship between mothers’ psychological well-being and their attitudes towards their children. Journal of Psychology Research, 10(1), 1-9. https://doi.org/10.17265/2159-5542/2020.01.001

Tifferet, S. (2020). Gender differences in social support on social network sites: A meta-analysis. Cyberpsychology, behavior and social networking, 23(4), 199–209. https://doi.org/10.1089/cyber.2019.0516

Wang, R., Liu, Q., & Zhang, W. (2022). Coping, social support, and family quality of life for caregivers of individuals with autism: Meta-analytic structural equation modeling. Personality and Individual Differences, 186, Article 111351. https://doi.org/10.1016/j.paid.2021.111351

Wells, I. E. (2010). Psychological well-being. Nova Science Publishers, Inc.

Zheng, L., Grove, R., & Eapen, V. (2019). Predictors of maternal stress in pre-school and school-aged children with autism. Journal of Intellectual & Developmental Disability, 44(2), 202-211. https://doi.org/10.3109/13668250.2017.1374931

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